You're in a bad spot. I know a person who's also disabled permanently by pain. (Failed L4-L5 fusion)
When I met her, she was on the Fentanyl patch, Oxycontin, Fentanyl sticks for breakthrough, Adderal for somnolence, etc. It's a rough road, and I obviously can't say your situation is similar enough for it to work, but she got herself away from the opioids. She stopped using the patches first, then reduced and eliminated the oxycontin, then weaned off the pain sticks, all while getting onto an SNRI - Wellbutrin does a pretty good job without lethargy and weight gain. There's another SNRI that's actually labelled for pain now... can't remember the name of it. Doxepin is probably the top of the heap for pain management in that class of drugs, but somnolence and weight gain are a given.
She's been opioid free for years now, and although she has pain every day, she can cope with it, laying down with a heat pack when it gets to its worst state. Over time, even that's gotten less frequent. She wouldn't go back to the opioids at this point if you paid her.
I hope this post helps you. People don't understand about pain killers. Who could expect them to? Even when you explain things, it doesn't have the kind of impact that the constant "drugs are bad" message from the media has. Maybe someday marijuana will be more accepted as a pain med, but until then DO WHAT WORKS. It's kinda like self-defense, really. You save your own life even if it's going to end up in the courts.